A State by State Guide of Resources for Parents and Professionals Regarding School Reintegration for Children who have a Traumatic Brain Injury
Compiled by Roberta DePompei, Ph.D; Beth Urbanczyk, M.A.; Ann Glang, Ph.D; Angela Rainsburg, M.A.; Laura Uhl, M.A.
April 15, 2004
This Resource Guide is provided to parents and professionals who are seeking user friendly information about children and adolescents with Acquired Brain Injury (ABI) or Traumatic Brain Injury (TBI). This information is primarily about transitions and school reintegration for these youths. The information is divided into sections that provide state by state listings of resources. These resources include pamphlets, booklets, CDs, videos, and persons identified in the state who can serve as resources for assistance. Some states did not reply to our survey and so every state is not included. It is suggested that you contact your state department of education for assistance if you are unable to find helpful information in this guide. Each state also has a Protection and Advocacy agency for persons with disabilities that can assist you with legal questions and advice. You can find a listing of these agencies at www.ndrn.org.
Finally, you can use the following national website resources for information and referral assistance.
Some links in this section are to documents created in Adobe® Portable Document Format (PDF). To view and print PDF documents, you need to have Adobe® Reader®, a free software program, installed on your computer. Download Adobe® Reader®
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Tom Novack, Ph.D
Neuropsychologist
University of Alabama at Birmingham
Telephone 205-934-3454
novack@uab.edu
Augusta Cash
Alabama Department of Rehabilitation Services
Telephone 205-290-4408
acash@rehab.state.al.us
Alabama Department of Rehabilitation Services. (2002).
PASSAGES: A Community-Based, Family-Centered Model for Developing a System of Care for Children and Youth with Traumatic Brain Injury.
Montgomery, AL: Author.
The purpose of this manual is to assist families in accessing information, referrals and/or services for themselves or their child/youth with a Traumatic Brain Injury. It is also designed to offer information, support and services at whatever point a family identifies its need for assistance. PASSAGES is a care coordination model utilized in the State of Alabama's Department of Rehabilitation Services Children's Rehabilitation Services(CRS). The manual provides specific guidelines to help with developing a family plan for services, identifying available community services, implementing the family plan, revising the plan and transitioning to adult services as needed. A glossary of terms related to Traumatic Brain Injury is included.
Ordering Information: Contact Barbara Hankins at bhankins@rehab.state.al.us or online at http://www.rehab.state.al.us/
Alabama Department of Rehabilitation Services. (2002).
BRAIN CD-ROM TOOL [CD-ROM].
Montgomery, AL: Author.
The Brain Injury Resource and Information Network (BRAIN) CD-ROM is composed of 3 CD's. The purpose of the BRAIN CD-ROM tool is to provide an instructional programming tool for enhancing the knowledge on TBI, identifying students with TBI that may not be certified TBI, accommodating and serving youth with a TBI and facilitating their successful transition to school. The CD focuses primarily on children ages 13 - 21.
Ordering Information: Contact Augusta Cash at acash@rehab.state.al.us
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Susan M. Wolf, Ph.D
Executive Director
Wattle and Daub Consulting
Spouse of survivor with moderate injury and parent of survivors with mild TBI. Curriculum developer and trainer regarding TBI issues in Western United States.
Telephone 480-354-9000
sue@wd.org
Jacque Salamy, M.S.
Traumatic Brain Injury Consultant
Mesa Unified School District, Mesa, AZ
Telephone 480-472-0662
jsalamy@mpsaz.org
Valerie Luks
Arizona Department of Education, Exceptional Student Services
Telephone 602-364-1989
vluks@ade.az.gov
Chrystal Snyder
Executive Director
Governor's Council on Spinal Cord and Brain Injury
Telephone 602-863-0484
csnyder@azdes.gov
Mary Jane Trunzo, MA
Arizona Institute for Communication and Cognitive Disorders
Phoenix, AZ
Telephone 602-224-0202
mjtrunzo@mindspring.com
Arizona Department of Education
Exceptional Student Services
1535 W. Jefferson Bin #24
Phoenix, AZ 85007
Telephone 602-364-1989
Arizona Center for Disability Law
100 North Stone Ave., Suite 305
Tucson, AZ 85701
Telephone 520-327-9547 (voice/tty)
Telephone 800-922-1447 (voice/tty)
Fax 520-884-0992
3839 North Third Street
Suite 209
Phoenix, AZ 85012
Telephone 602-274-6287 (voice/tty)
Telephone 800-927-2260 (voice/tty)
Fax 602-274-6779
Brain Injury Association of Arizona
4250 East Camelback Rd., K-280
Phoenix, Arizona 85018
Telephone 602-508-8024
Fax 602-508-8285
Arizona has multiple tip cards and information sheets for hospital to school reintegration. These are provided both in English and Spanish. Contact Spinal Cord and Brain Injury Trust at telephone 602-863-0484. Tip cards and information sheets are also available at www.tbitac.org in the toolbox.
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Jeanne E. Dise-Lewis, Ph.D
Director, Psychology Services in Rehabilitation
Associate Professor, Department of Rehabilitation Medicine
The Children's Hospital
University of Colorado Health Sciences Center
Telephone 303-861-6642
dise-lewis.jeanne@tchden.org
Support Group for Children and Teens and their Families
The Children's Hospital, Denver
Telephone 303-861-6640
Colorado Department of Education, the Brain Star Project, and the Center for Community Participation at Colorado State University. (2001). Brain injury: A manual for educators. Fort Collins, CO: Author.
This manual was designed to provide information to educators regarding students with Traumatic Brain Injury. This manual provides information on the following topics: An overview of the brain, the relationships between brain injury, learning and development, transition issues, changes in learning and compensatory strategies, task analysis, brain injury teams, and Special Education and 504 Processes. The manual also includes statewide resources, suggested readings, and a form for classroom observations.
Ordering Information: This manual is available for download at http://cde.state.co.us/cdesped/download/pdf/TBI-MANUALmar2002.pdf (PDF file)
Dise-Lewis, J.E., Calvery, M.L., Lewis, & Hal C. (2002). BrainSTARS: Brain injury: Strategies for teams and re-education for students. Denver, CO: Author
The purpose of this manual is to provide educational materials for parents and teachers of children who have acquired brain injury. This manual provides information regarding Acquired Brain Injury in children and adolescents from a medical, educational and developmental perspective. It provides specific teaching strategies related to behavior and learning. The manual also provides an in-depth chapter focusing on problem solving for specific neurodevelopmental clusters and then provides specific interventions. It offers guidelines for mobilizing community resources and for developing the IEP. A list of resources and glossary are provided. Worksheets for recording information are included. This manual is $135.
Ordering Information: Telephone 800-458-6500 ext. 6642 or 303-861-6642. Contact Jean Dise-Lewis at dise-lewis.jeanne@tchden.org to order this manual.
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Bonnie G. Wirth, RN, CRRN
Liaison to the Brain and Spinal Cord Injury Program
Florida Department of Health, Children's Medical Services
Telephone 850-245-4444 ext. 2260
Bonnie_Wirth@doh.state.fl.us
Florida Department of Education. An introduction to exceptional student education. Author.
This manual, describing the educational process for students with exceptional needs, can be obtained through the Florida Department of Education.
Ordering information: Contact www.myfloridaeducation.com for more information.
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Georgia Learning Resource System. (1994). Passport to education - A handbook for educators, parents, and health care professionals of children with health impairments. GA: Author.
Telephone 678-676-2400
Georgia Learning Resource System. (1996). Traumatic brain injury: facing the challenge.
GA: Author.
Telephone 678-676-2400
Georgia Learning Resource System. (2001). Parents rights handbook for special education.
GA: Author.
Telephone 678-676-2400
Georgia Advocacy Office. (2001). Advocating for your child's education. [Brochure]. Tucker, GA: Author.
Telephone 404-885-1234
National Association of School Psychologists. Traumatic brain injury: Handout for teachers. Bethesda, MD: Author.
Telephone 301-657-0270
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Bess Tanabe
Division of Special Education
State of Hawaii
Telephone 808-735-8250
Brain Injury Association of Hawaii
www.biausa.org/Hawaii/
1175 South Beretania Street, Suite 204
Honolulu, HI 96826
Telephone 808-941-0372
Fax 808-941-0358
biah@cchono
Neurotraining Therapist Program
www.tbi.k12.hi.us
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Sue Pearson, M.A.
Center for Disabilities and Development
University of Iowa
Telephone 319-356-1172
s-pearson@uiowa.edu
Tom Brown, BS, CBIS-CI
Telephone 515-281-6283
tbrown@health.state.ia.us
University of Iowa Hospitals and Clinics, Center for Disabilities and Development, & Iowa TBI Grant Project. (2001). The outside to the inside: Including students with brain injury. [Motion Picture]. Des Moines, IA: Author.
This video and booklet were developed to outline a process that administrators, teachers and other school personnel, along with parents and students, can use to help ease the transition back to school following a TBI. The booklet summarizes the process, provides additional resources and a reproducible planning sheet. The video is 23 minutes long.
Ordering Information: Contact Tom Brown for details. Telephone 515-281-6283 tbrown@health.state.ia.us
Iowa TBI Grant Project. (1999). Pieces of the puzzle: An introduction to brain injury. [Motion Picture]. Des Moines, IA: Author.
This video provides an overview of the anatomy and functions of the various parts of the brain. It discusses the different ways that injuries occur and the possible changes to expect after sustaining a TBI. Persons with TBI and family members also share personal stories to illustrate common cognitive, emotional, and behavioral changes. The videotape is captioned and is 25 minutes long. This video can be made available with your state-specific information at the end, instead of the Iowa contacts. Cost is $10.
Ordering Information: Contact Tom Brown for details. Telephone 515-281-6283. tbrown@health.state.ia.us
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Janet Tyler, Ph.D
Kansas State Department of Education's Neurologic Disabilities Support Project
Telephone 913-588-5943
jtyler@kumc.edu
Linda R. Wilkerson, M.A.
Kansas State Department of Education's Neurologic Disabilities Support Project
Telephone 913-588-5943
lwilkers@kumc.edu
Tyler, J.S. (2000). Traumatic brain injury in-service training module. Kansas City, KS: Author.
This training module is designed to assist individuals by providing information about traumatic brain injury to educators and other professionals who will be working with students with TBI. Upon completion of training session professional will have knowledge of programming for and the instruction of children with TBI. Cost is $30.
Ordering Information:
University of Kansas Medical Center
Department of Special Education
4001 Miller Bldg.
3901 Rainbow Blvd.
Kansas City, KS 66160-7335
Telephone 913-588-5943
Tyler, J. & Williams, J. (1993). Perspectives on traumatic brain injury. [Motion Picture]. Kansas City, KS: Author.
This 25 minute videotape provides educators, service providers, and families of students with traumatic brain injury information of the long-term effects of TBI. Interviews with an 8th grade student, who is 2 years post injury, his family and teachers illustrates the long-term educational and psychosocial difficulties students with TBI encounter. Suggestions for educational programming provided. Cost is $10.
Ordering Information:
University of Kansas Medical Center
Department of Special Education
4001 Miller Bldg.
3901 Rainbow Blvd.
Kansas City, KS 66160-7335
Telephone 913-588-5943
Wilkerson, L. & Tyler, J. (1994). Never give up. [Motion Picture]. Kansas City, KS: Author.
This 30 minute videotape provides case studies of two students who have had severe brain injuries. It traces the education of an elementary aged student who had a stroke at age 2, and a high school student who was involved in a pedestrian/motor vehicle accident at age 8. Interviews with teachers and family members tell of the constant struggle to meet the educational needs of students with TBI. Includes suggestions on developing programs for students with severe TBI. Cost is $10.
Ordering Information:
University of Kansas Medical Center
Department of Special Education
4001 Miller Bldg.
3901 Rainbow Blvd.
Kansas City, KS 66160-7335
Telephone 913-588-5943
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Kentucky Department of Education. Technical assistance manual on brain injury.
This manual was designed to provide information to enable school districts in Kentucky to better understand the characteristics and changing nature of TBI. It was written for local school district personnel who are evaluation, identifying, and providing specially designed instruction and related services to students with TBI. It was also written in an effort to help families understand the federal and state regulations which the local district is required to follow. This manual provides information on the following topics:
- anatomy and functions of the brain
- types and causes of brain injury
- consequences of brain injury
- educational services and the return to school
- evaluation and eligibility criteria and implementation
- service delivery options
- interventions and teaching strategies
- strategies to address motor, sensory and physical impairments
- implications for family, siblings and peers
- vocational considerations
This manual provides specific tests for evaluating the psycho-educational, academic, motor functioning, visual perception, communication, emotional, and cognitive needs of students with TBI. A list of references and readings for educators, a glossary of educational, medical and rehabilitation terms and a list of national and statewide resources are provided. The manual also includes an 8 page handout developed by the Brain Injury Association of Kentucky entitled In Depth Review of the Brain & Injury.
Ordering Information: This 90 page manual is available by download at the following website: http://www.kde.state.ky.us/KDE/Instructional+Resources/
Student+and+Family+Support/
Exceptional+Children/Forms+and+Documents/
Technical+Assistance+Manuals+and+Documents.htm
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Trish Janus, M.Ed.
Department of Special Education
8001 Lynnbrook Dr.
Bethesda, Md 20814
Telephone 301-657-4959
patricia_janus@fc.mcps.k12.md.us
Joan Carney, Ph.D
Director of Hospital-based Education Programs
Kennedy Krieger Institute
Baltimore, MD
Telephone 443-923-4554
carney@kennedykrieger.org
Lisa Schoenbrodt, Ed.D., CCC-SLP
Professor, Speech Language Pathology
Loyola College in Maryland
Telephone 410-617-2506
lschoenbrodt@loyola.edu
Brain Injury Association of Maryland. (2003) Traumatic brain injury: An educator's guide. Baltimore, MD: Author.
This guide provides comprehensive information on the mechanics of brain injury and the physical, social-emotional, and cognitive changes after pediatric brain injury. Educational considerations and strategies to assist the student in the school environment are also provided. This 79 page module includes case studies and can be used in both lecture and discussion format. The module was developed in collaboration with the Brain Injury Association of Maryland and the Maryland State Department of Education. The CD version is $40. The CD and printed manual containing speaker's notes, overheads, and participant's handouts are $110.
Ordering information:
Brain Injury Association of Maryland
2200 Kernan Drive
Baltimore, MD 21207
Telephone 410-448-2924
Maryland TBI Grant Project. (2002). Traumatic brain injury: An educators' guide. Baltimore, MD: Author.
This guide provides school personnel with a general understanding of the brain, its functions, and the impact of a brain injury. It also discusses intervention strategies and various supports for students with brain injury and their families. The curriculum includes a pre and post test, evaluation form, handouts, and a PowerPoint presentation. The manual and PowerPoint presentation are available as downloadable files.
Ordering Information:
Maryland TBI Grant Project
2200 Kernan Drive
Baltimore, MD 21207-1207
Telephone 410-448-3922
Fax 410-448-3850
mdtbiproject@erols.com
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Marilyn Spivak
Parent and Founder of Brain Injury Association of America
Telephone 617-573-2909
mspivak@partners.org
Stephen Haley, Ph.D
Center for Rehabilitation Effectiveness, Boston University
Telephone 617-353-1295
smhaley@bu.edu
Massachusetts Parents Advisory
www.masspac.org
Massachusetts Department of Education
www.doe.mass.edu/sped
Federation for Children with Special Needs
www.fcsn.org
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Deb Williamson
State TBI Specialist
Minnesota Department of Education
Telephone 612-638-1532
deb.williamson@state.mn.us
Minnesota Department of Education. (2000). Guidelines for education assessment and services for students with traumatic brain injury. Minnesota: Author.
Ordering Information: Debra Williamson
Telephone 612-638-1532
deb.williamson@state.mn.us
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The Center for Innovations in Special Education Instructional Materials Laboratory. (1999). Educational directions for students with traumatic brain injury. Columbia, MO: Author.
This manual for school personnel was developed to assist in the provision of educational opportunities for students with traumatic brain injury, this manual answers commonly asked questions about the educational needs of these students along with practical applications of educational practices and programming. Article, book, organization, and Web site resources are appended. It focuses on the following key areas of three case studies: developing a school re-entry plan; implementing learning, memory, and behavioral strategies; developing in individualized education program; conducting a functional behavioral assessment; and developing a behavioral intervention plan.
Ordering Information:
The Center for Innovations in Special Education
Instructional Materials Laboratory
2316 Industrial Drive
Columbia, MO 65202.
Telephone 800-669-2465
Fax 573-882-1992
Identify the product by title, catalog number (92-2550-I), and price ($16.10 outside of Missouri and $12.90 within Missouri).
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Nebraska Department of Education. Traumatic brain injury: A guide for educators in Nebraska Public Schools.
Ordering Information:
Special Education Office
301 Centennial Mall South
Lincoln, NE 68509-4987
Telephone 401-471-2471
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Houston, J., Warnock, L., & Lash, M. (1999). Traumatic brain injury in children and teens: A national guide for families. Hanover, NH: Dartmouth Medical School.
The purpose of this guide is to help families cope with their child's injury, locate medical and educational services to assist their child, and find ways to pay the short and long term financial bills. The guide provides detailed explanations regarding the medical aspects of a TBI including a who's who in the ICU and other hospital units, terminology and suggestions for interacting with your child as he is recovering from a brain injury. Worksheets are provided for recording information in the ICU, hospital/rehabilitation center and school. Specific worksheets are available to help families deal with insurance and with other bills. Each section ends with a list of reading resources and definitions of words used in the hospital, rehabilitation and educational settings. New Hampshire Emergency Medical Services Project (NHEMSC).
Ordering Information: A prior web version of this publication is no longer available.
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Ronald C. Savage, Ed.D.
Executive Vice President
Bancroft Neurosciences Institute and The Bancroft Foundation
Bancroft NeuroHealth
PO Box 20 Hopkins Lane
Haddonfield, NJ 08033
856.429.5637 ext. 379
RSavage@bnh.org
Bradford J. Ross, Ph.D
Brain Injury Program at Children's Specialized Hospital
Mountainside, New Jersey
Telephone 908-233-3720 ext. 2449
bross@childrens-specialized.org
Brain Injury Association of New Jersey, Inc. (2001). Brain injury: A guide for educators. Edison, NJ: Author.
This manual was written to help educators identify, understand and respond to the special needs of students with brain injuries. The manual provides information on the following topics:
- types and causes of brain injury
- consequences of brain injury
- anatomy of the brain
- school reentry
- assessment and teaching strategies
- IEP development
- program planning and implementation
- transition to adulthood
The manual does provide information regarding Section 504 Plans in contrast to the IDEA. The manual includes case examples of students with either a mild, moderate or severe brain injury. Copies of the Glasgow Coma Scale for Children, the Rancho Los Amigos Scale of Cognitive Functioning for Children, a list of references and readings for educators, and a glossary of medical and rehabilitation terms are provided. Cost is $7 for 1 copy. Two or more copies are $6.50 each.
Ordering Information:
Brain Injury: A Guide for Educators can be purchased from BIANJ, Inc.
1090 King George Post Rd., Suite 708
Edison, NJ 08837
This 104 page manual is available for download at: http://www.bianj.org/hwch_pubs.html
Brain Injury Association of New Jersey, Inc. (2001). Brain injury: A guide for school nurses. Edison, NJ: Author.
This manual was written to provide school nurses with information about brain injury as it relates to a child's education and health needs, and to encourage support from school nurses to help raise awareness about brain injury and its prevention. The authors focus on students with brain injuries that have been diagnosed with moderate to severe brain injury by a medical professional. Additionally, they also provide information regarding the needs of students with Mild TBI. The manual provides information on the following topics:
- types and causes of brain injury
- anatomy of the brain
- consequences of brain injury
- pharmacological intervention
- school reentry
- role of the school nurse
The manual includes case examples of students with either a mild, moderate or severe brain injury. Copies of the Guidelines for Management of Concussion in Sports, the Glasgow Coma Scale for Children, the Rancho Los Amigos Scale of Cognitive Functioning for Children, a sample Individualized Healthcare Plan, a list of references and readings for educators/school nurses, and a glossary of medical and rehabilitation terms are provided. Cost is $6 for 1 copy. Two or more copies are $5.50 each.
Ordering Information:
Brain Injury: A Guide for School Nurses can be purchased from BIANJ, Inc.
1090 King George Post Rd., Suite 708
Edison, NJ 08837
This 88 page manual is available for download at: http://www.bianj.org/hwch_pubs.html
Brain Injury Association of New Jersey, Inc. (2001). Brain injury: A guide for families about school. Edison, NJ: Author.
This manual was written to help families when their child enters or returns to school after a brain injury. The manual provides information on the following topics:
- types and causes of brain injury
- eligibility, available school services, I.D.E.A., 504 Plans, etc.
- IEP development
- role of the school nurse
- participation in sports related activities
- advocating for your child and service coordination
The manual includes case examples of students with either a mild, moderate or severe brain injury. A list of references and readings for families, a glossary of educational terms, a glossary of medical and rehabilitation terms and a list of national and statewide resources are provided. Cost is $5 per copy.
Ordering Information:
Brain Injury: A Guide for Families about School can be purchased from BIANJ, Inc.
1090 King George Post Rd., Suite 708
Edison, NJ 08837
This 75 page manual is available for download at: http://www.bianj.org/hwch_pubs.html
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Joshua Cantor, Ph.D
Research and Training Center for the Community Integration of Individuals with TBI
Mount Sinai School of Medicine
New York, New York
Telephone 212-241-8850
joshua.cantor@msnyuhealth.org
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Stephen R. Hooper, Ph.D
Department of Psychiatry
The Clinical Center for the Study of Development and Learning
The University of North Carolina School of Medicine
Telephone 919-966-5171
Stephen.hooper@cdl.unc.edu
Marilyn Lash, MSW
Lash and Associates Publishing/Training, Inc.
708 Young Forest Drive
Wake Forest, NC 27587
Telephone 919-562-0015
mlyn@lapublishing.com
Richard Guare
North Carolina
Telephone 603-436-4042
North Carolina Board of Education. (1997). Best practices in assessment and programming for students with traumatic brain injuries. Raleigh, NC: Author.
This manual was designed to meet the following objectives for school personnel working with students with Traumatic Brain Injury:
- Increase basic understanding and knowledge of traumatic brain injury (demographics,
mechanics of injury)
- Provide a basic understanding of how the brain works (neuroanatomy and brain-behavior
relationships)
- Provide an in-depth understanding of techniques designed to amend and expand current
assessment methods in order to better meet the needs of students with TBI
- Provide an in-depth understanding of the reentry process and school programming appropriate for students with TBI (preparing school staff, developing cognitive retraining programs, sample teaching strategies, etc.)
The manual also provides additional and/or clarifying information in Info Boxes and via Case Notes. The manual also includes a list of References and Appendixes. The Appendixes include: a glossary of terms, Test Descriptions and Ordering Information, and a Sample TBI Test Report.
Ordering Information: This publication can be purchased by calling the North Carolina Department of Public Instruction at telephone 800-663-1250. Publication Number is EC140 and Publication Date is 1997.
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Roberta DePompei, Ph.D
University of Akron
Polsky Building, 188K
Akron, Ohio
Telephone 330-972-6114
rdepom1@uakron.edu
DeAnna Frye, Ph.D
ReMed
1330 Corporate Dr. Suite 500
Hudson, OH 44236
Telephone 330-342-0926
dfrye@remed.com
Ohio Legal Rights Service
50 West Broad Street, Suite 1400
Columbus, Ohio 43215-5923
Telephone 614-466-7264 or 800-282-9181 (toll-free within Ohio only)
TTY 614-728-2553 or 800-858-3542 (toll-free within Ohio only)
Website http://olrs.ohio.gov
Ohio Legal Rights Service has written and produced a number of publications for use by families who have a member with a Traumatic Brain Injury. All publications are available in hard copy or can be downloaded from the agency web site. These publications. Refer to the OLRS Publications Listed by Topic section.
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Ann Glang, Ph.D
Teaching Research, Eugene, Oregon
Telephone 541-346-0594
anng@oregon.uoregon.edu
Tuck Stevens
Oregon TBI Consulting Team Coordinator
Teaching Research, Eugene, Oregon
Western Oregon University
Telephone 541-346-0597
tuck@oregon.uoregon.edu
Oregon Brain Injury Resource Network (OBIRN)
www.tr.wou.edu/tbi/index.html
Telephone 800-544-5243
Coalition in Oregon for Parents Education (COPE)
Oregon TBI Consulting Team
www.tr.wou.edu/tbi/TEAM
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TBI Resource Center. (1999). The student with traumatic brain injury: School reintegration. Providence, RI: Providence College.
This 8 page manual was developed to assist school personnel, families and hospital personnel plan for school reintegration for students with TBI. The manual provides general overview information on TBI which includes the Federal, RI State and BIA of America's definitions of TBI; a brief overview of cognition and cognitive rehabilitation, the referral process that is specific to the state of RI, suggestions for families and general resources for family support, a general overview of the consequences of TBI, school-based and neuropsychological assessment, sample teaching strategies and a list of local and national resources.
Ordering Information:
Diane LaMontagne
TBI Coordinator for the RITAP
Rhode Island College
Providence, RI 02908
Telephone 401-456-4600
dlamonta@ritap.org
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Beth Urbanczyk, MS-CCC
Consultant for Metro Nashville Public Schools, Nashville, TN
Telephone 615-319-2473
beth@hayseed-dixie.com
Cecilia Franklin, M.Ed
TBI Itinerant Teacher
Metro Nashville Public Schools
Nashville, TN
Telephone 615-612-2551
Cecilia.Franklin@mnps.org
Tennessee TBI Grant Project. (2001). Brain Injury 101. Nashville, TN: Author.
This Power Point presentation is designed to provide information on the incidence, causes, and effects of TBI, in addition to practical strategies for school personnel to improve their support of students with TBI in the classroom. The case studies (downloadable PDF, DOC, or TXT file) allow participants to discuss in detail the application of the strategies offered in the presentation to several student profiles.
Ordering Information:
Tennessee TBI Grant Project
480 Craighead Street, Suite 200
Nashville, TN 37204-7204
Telephone 615-383-9442
www.tndisability.org/brain
www.tbitac.org (free download)
Tennessee TBI Grant Project. (2001). Take two: After traumatic brain injury. [Motion Picture]. Nashville, TN: Author.
In this 17 minute long videotape, several young adults, who sustained brain injuries as children, share their stories of personal discovery. Their voices along with the perspectives of their family members and health care and education providers, define well the many challenges and rewards commonly experienced along the path of recovery after sustaining a TBI. The stories not only illustrate the cognitive, emotional, and behavioral changes but also the achievement of new goals that may occur as a result of a TBI. The videotape is captioned. Cost is $7.
Ordering Information:
Tennessee TBI Grant Project
480 Craighead Street, Suite 200
Nashville, TN 37204-7204
Telephone 615-383-9442
www.tndisability.org/brain
www.tbitac.org (free download)
Tennessee TBI Grant Project. (2002). Project BRAIN interactive. [CD-ROM]. Nashville, TN: Author.
This CD has been developed to:
- Provide "hot" links and references to local and national information on TBI in the school-aged population
- Provide additional information and "tools" to use in the classroom when working with students
who have TBI
- Provide insights from family perspectives on how to support students with TBI at school
- Provide basic information about the medical aspects of TBI, including how TBI happens & how the effects may look, information about concussion/mild TBI, and information about medical management following TBI
This interactive CD-ROM gives users the opportunity to practice utilizing Ongoing, Contextualized, Collaborative, Hypothesis Testing (Ylvisaker & Feeney, 1998), watch video clips of families and service providers discussing issues relating to TBI and it provides direct links to a variety of sites on the internet that provide information regarding TBI.
Ordering Information:
Tennessee TBI Grant Project
480 Craighead Street, Suite 200
Nashville, TN 37204-7204
Telephone 615-383-9442
www.tndisability.org/brain
www.tbitac.org
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Sandi Chapman, Ph.D
1966 Inwood
Dallas, TX 75235
Telephone 214-905-3007
schapman@utdallas.edu
Can help connect to TBI Collaborative that problems solves childrens' issues in the Dallas area.
Sandra Knutsen
Technical Assistant Field Specialist
Dallas, TX
Telephone 972-726-8740
sjknutsen@tbitac.nashia.org
Texas Education Agency
www.tea.state.tx.us
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Utah's trainer's manual for school personnel regarding traumatic brain injury.
This manual can be obtained through:
Utah State Office of Education
250 East 500 South
Salt Lake City, Utah 84111
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Rapp, D. (1998). TBI in children: A practical guide for Vermont educators. Vermont: Author.
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Waaland, P.K. (1993). Returning to school following TBI: A guide for school personnel. [Motion Picture]. Richmond, VA: Virginia Commonwealth University.
This three-part videotape addresses the causes and consequences of TBI, eligibility requirements and curriculum considerations, and classroom strategies for promoting academic success following TBI. It emphasizes the need for family-educator-professional partnerships in preparing a student with TBI to return to the school setting. The videotape is 60 minutes long. Cost is $57.50.
Ordering Information:
National Resource Center for TBI
Department of PM&R
Virginia Commonwealth University
P.O. Box 980542
Richmond, VA 23298-0542
Telephone 804-828-9055
Fax 804-828-2378
mbking@hsc.vcu.edu
Raines, S.R. & Waaland, P.K. (1995). For kids only: A guide to brain injury. Richmond, VA: Virginia Commonwealth University.
This manual is aimed at 6 to 12 year old siblings and classmates of a child who has had a brain injury. Filled with drawings, quotes from children, and simple explanations of the effects of brain injuries. Cost is $6.50.
Ordering Information:
National Resource Center for TBI
Department of PM&R
Virginia Commonwealth University
P.O. Box 980542
Richmond, VA 23298-0542
Telephone 804-828-9055
Fax 804-828-2378
mbking@hsc.vcu.edu
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Diane Smith
Attorney - Education, IDEA, Assistive Technology
National Association of Protection and Advocacy Systems, Inc.
900 Second Street, NE, Suite 211
Washington, DC 20002
Telephone 202-408-9514
Fax 202-408-9520
diane@nas.org
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Traumatic Brain Injury: A Resource and Planning Guide
www.dpi.state.wi.us/dpi/dlsea/een/tbi.html
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Aspen Reference Group. (1996). Brain Injury Survivor and Caregiver Education Manual. Gaithersburg, MD: Delmar.
Blosser, J. & DePompei, R. (2003). Pediatric traumatic brain injury: Proactive intervention. New York: Thomson Learning.
Dise-Lewis, J.E., Calvery, M.L., & Lewis, H.C. (2002). BrainSTARs. [Manual]. Denver: Alliance.
Glang A., Singer, G.H.s., & Todis, B. (1997). Students with acquired brain injury: The school's response. Paul Brookes.
Golberg, A. & Thomas, C. (1996). Acquired brain injury in childhood and adolescence: A team and family guide to educational program development and implementation. Springfield: Charles C. Thomas.
Hibbard, M., Gordon, W.A., Martin, T., Raskin, B., & Brown, M. (2001). Students with traumatic brain injury: Identification, assessment and classroom accommodations. [Brochure] New York: Research and Training Center on Community Integration of Individuals with Traumatic Brain Injury.
Hux, K. (2003). Assisting survivors of traumatic brain injury: The role of speech language pathologists. Austin: Pro Ed.
Lash,M., & Wolcott, G. Signs and strategies for educating students with brain injuries.
Pearson Wake Forest, NC: Lash and Associates.
Savage, R. & Wolcott, G. (1994). An educational manual: What educators need to know about students with brain injury.
Washington DC: BIA.
Savage, R. & Wolcott, G. (1994). Educational dimensions of acquired brain injury.
Austin: Pro Ed.
Semrud-Clikeman, M. (2001). Traumatic brain injury in children and adolescents.
New York: Guilford Press.
Shoenbrodt, L. (2001). Children with traumatic brain injury: A parents' guide.
Woodbine House.
Siantz-Tyler, J. & Mira, M. (1999). Traumatic brain injury in children and adolescents: A sourcebook for teachers and other school personnel.
Austin: Pro Ed.
Singer, G., Glang, A., & Williams, J. (1996). Children with acquired brain injury: Educating and supporting families.
Baltimore: Paul Brookes.
Ylvisaker, M. (1998). Traumatic brain injury rehabilitation: Children and adolescents.
Massachusetts: Butterworth-Heinemann.
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Articles cited from various issues of Brain Injury Source, a publication of the Brain Injury Association, Inc. can be obtained from:
Brain Injury Association of America
www.biausa.org
8201 Greensboro Drive
Suite 611
McLean, VA 22102
Telephone 703-761-0750
Fax 703-761-0755
Information on the Brain Injury Association of America's TBI Challenge! newsletter can be obtained from:
Brain Injury Association of America
www.biausa.org
8201 Greensboro Drive
Suite 611
McLean, VA 22102
Telephone 703-761-0750
Fax 703-761-0755
Bruce, S. & Selznick, L. (2003). The role of functional behavior assessment in children's brain injury
rehabilitation. Brain Injury Source, 3, 32-37.
Buyer, D. (1999). Neuropsychological assessment and schools. Brain Injury Source, 3, 18-21.
Clark, E. (1996) Children and adolescents with traumatic brain injury: Reintegration challenges in educational settings. Journal of Learning Disabilities, 5, 549-560.
D'Amato, R.C. & Rothlisberg, B.A. (1996). How education should respond to students with traumatic brain injury. Journal of Learning Disabilities, 6, 670-683.
DePompei, R. (1999). Run a reverse left: Communication disorders after brain injury. Brain Injury Source, 3, 22-25.
DiScala, C. & Savage, R. (2003). Epidemiology of children with TBI requiring hospitalization. Brain Injury Source, 3, 8-13.
Glang, A., Robinson, L., & Todis, B. (1999). Collaboration between parents and educators: Parents or adversaries? Brain Injury Source, 3, 10-13.
Hooper, S. (2003). School psychology and traumatic brain injury: A programmatic approach to training. Brain Injury Source, 3, 28-31.
Janus, P.L, Mishkin, L.W., & Pearson, S. (1997). Beyond school re-entry: Addressing the long-term needs of students with brain injuries. NeuroRehabilitation, 9, 133-148.
Kelly, J. & Savage, R. (1999). Concussion in sports and return to school issues following concussion. Brain Injury Source, 3, 34-37.
Lash, M. & DePompei, R. (2003). The right to know: Educating families when a child has a brain injury. Brain Injury Source, 3, 20-27.
Savage, R., & McDonald, H. (1999). Managing challenging behaviors in the classroom. Brain Injury Source, 3, 26-33.
Sellars, C. & Vegter, C. (2003). When the very young child is injured. Brain Injury Source, 3, 14-29.
Sherwin, E. & Frey, W. (2003). Going the disease: Pursuing post secondary education after a traumatic brain injury. Brain Injury Source, 3, 42-48.
Tyler, J. & Grandinette, S. (2003). Effective teaching strategies. Brain Injury Source, 3, 38-41.
Tyler, J. & Wilkerson, L. (1999). Planning school transitions for students with TBI. Brain Injury Source, 3,
14-17.
Van Kuren,L. (2001). Traumatic brain injury: The silent epidemic. CEC Today, 7.
Verburg G., Borthwick B., Bennett B., & Rumney P. (2003). Online support to facilitate the reintegration of students with brain injury: Trials and errors. NeuroRehabilitation. 2, 113-23.
Ylvisaker M., Todis B., Glang A., Urbanczyk B., Franklin C., DePompei R., Feeney T., Maxwell N.M., Pearson S., & Tyler J.S. (2001). Educating students with TBI: Themes and recommendations. Journal of Head Trauma Rehabilitation. 1, 76-93.
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